Home Safety for People With Huntington's DiseaseEn Español (Spanish Version)
If you are caring for a person with Huntington's disease
alert to special safety concerns in the home. Certain
manifestations of the disease can leave the person more at risk for
falls and other accidents. For example, the person may be unsteady
on his feet and fall down the stairs. Poor coordination may
lead to tripping on a rug. Guns and other potential weapons in the
house are also hazardous, especially when someone in the house is
prone to emotional upsets, loss of judgment, or delusions.
Safety hazards in the home are not always apparent. For this
reason, your first step should be to do an assessment of the whole
house, keeping in mind the habits and routines of the
patient. Ask yourself what could be a potential hazard.
Lamp, extension, and telephone cords should be away from the flow
of traffic. Cords should not be beneath furniture, rugs or
carpeting where they could cause a fire. They should be in good
condition, not frayed or cracked.
Throw rugs are easy to trip over and should be avoided. All
other rugs, mats, and runners should be slip-resistant. They can be
purchased slip-resistant, or you can apply adhesive carpet tape or
rubber matting to the backs of them. Check slip-resistant rugs
periodically since they can lose their adhesiveness over time.
Short pile carpets are easier than deep pile carpets for people who
have walking problems.
Each month, make sure all smoke detectors work and are near all
bedrooms. Smoke detectors should be on the ceiling or 6-12 inches
below the ceiling on the wall. Fire extinguishers should be placed
in several locations, the most important being the kitchen. Make
sure all outlets and switches have cover plates and that no wiring
If the person with Huntington's disease smokes
, remember that it
may be one of his few pleasures. Taking cigarettes
away could cause agitation and extreme emotional upset. Instead,
consider the following tips to keep smoking from becoming such a
fire hazard in the home:
- Do not allow smoking in bed, which should be a rule for all
members of the household.
- Look at the places where the person tends to smoke. Remove
anything that could catch fire easily, such as newspapers,
magazines, boxes, dried flowers, or leaves.
- Make sure that the floor and furniture are flame-resistant.
- If your loved one smokes outside, make sure it is in a low-risk area, away
from dried wood, leaves, flowers, or flammable chemicals.
- Use ashtrays that are large, stable, and fireproof. Make sure
the ashtrays are placed in an area where they cannot be easily knocked onto
the floor. An ashtray attached to a floor stand might be a better
- Cigarette holders can help the person hold the cigarette
without it burning down to their fingertips.
Furniture can be an obstacle course for patients
who lack coordination. They may bump into furniture frequently, or
try to grab onto it to prevent a fall when they lose balance. To
prevent frequent bumps and difficulty getting around, you may need
to remove some furniture and store it in another area. Or you may
simply need to rearrange furniture so that there is more space for
maneuvering. Furniture should be strong enough to provide support
if the person with Huntington's disease grabs onto it to prevent a
Firearms should not be in the house. A person with Huntington's
disease may feel depressed
or full of rage, have hallucinations, display poor
judgment, or have a loss of coordination. If you choose to keep
firearms, you should use trigger guards, and keep guns unloaded and
locked in a cabinet. Ammunition should be locked in a fireproof
safe, and keys should be kept outside the home.
Knives and other sharp objects could also cause injury.
You may want to consider keeping sharp knives, scissors, and other
potential weapons in a locked cabinet, as well.
There are a number of potential hazards in most kitchens. Here
are some tips for kitchen safety:
- If possible, patients with Huntington's disease should be
supervised when in the kitchen.
- Keep hazardous chemicals in a locked cabinet.
- Towels, curtains, and other flammable objects should be kept
away from the stove top.
- Knobs should be removed from the stove.
- Keep the tables, counter tops, and stove free from
- Consider getting a corral for the stove top to keep pots from
being knocked over.
- Keep the person's kitchen items within reach.
- Consider using plastic plates, bowls, and cups.
- Get a stove that has safety features.
Medical supply houses sell and rent utilities that can make your
bathroom safer. The
following tips should be applied:
- Bathtubs and showers should be equipped with nonskid mats,
abrasive strips, or surfaces that are not slippery.
- Grab bars need to be in the bathroom and the shower.
- Existing grab bars should be strong and stable.
- A stool with a nonskid surface can also help those with balance
- A person who has difficulty standing on his own in the shower
should be accompanied by someone who can help.
- Spacer blocks and handles can be attached to toilet seats so
that the person has something to grip.
- If the patient is showing signs of cognitive decline,
medicines, cleaners, and potential toxins should be locked in a cabinet. Old
medicines should be thrown out.
- Night-lights should be installed in the bathroom and on the way
from the bedroom to the bathroom.
- A light switch should be near the door of the bathroom. A glow
switch will help the person see it in the dark.
- The water heater should be set to "low" or 120°F (49°C).
- Light switches should be within reach of the bed.
- If the person falls out of bed, consider
buying a cotton flat weave hammock. Unlike the hammock people put
in their back yards, these completely enclose the person.
- Consider installing padded rails around the bed, or getting a
- A floor bed may be helpful, as long as the person is able to
get up safely.
- Install night-lights.
- Have handrails on both sides of the stairwell.
- Help the person up and down the stairs, if necessary.
- Try to keep walls free from heavy paintings and objects that
could be knocked down.
- Install wooden railings or metal grab bars on the walls.
There are many things you can do to ensure the safety of a loved
one with Huntington's disease. The person should have easy access
to important phone numbers in case of emergencies. Preprogrammed
phones, answering machines, and cell phones can assist you.
Talk to neighbors about your loved one's condition. Be sure the
individual carries some form of personal identification and a phone
number, in case he wanders off and gets lost. Be prepared
for changes in the person's condition, and make safety
adaptations as necessary. A home safety evaluation by a trained physical therapist may be worthwhile.
Hereditary Disease Foundation
The Huntington Disease Society of America
International Huntington Association
Huntington Society of Canada